Hi Kim, Welcome to the board. Sorry to learn about your current condition. When I research experts and cutting edge technology... I follow the money. NIH/HHMI grants to Medical Schools are always a good start.
In the limited time vested, I have found this source. Hope it proves of some interest.
http://www.ninds.nih.gov/funding/are...y/fore_sci.htm
http://www.usnews.com/usnews/health/...pecihqneur.htm
Best of luck to you!
~ edited to add 'usnews' link